Archive for March, 2009

The Old Ball Game & The Same Old Song and Dance

March 31, 2009 · Filed under Celebrations, Education/School, Family, Friends, Fun Times, Health, Normal Stuff, Outings, children with transplants

Actually life is great here. We got a call from Derek;s nephrologist yesterday that his kidney function has improved and much of the “bumps” we have seen was probably due to the recurrent illnesses the poor kid was getting all winter. We actually have seen an increase in his kidney function, YEAH!!!!!

Last weekend was Derek’s first official T-ball game. As I have mentioned he plays on the Angels and for their first game they did really well. All of the boys (girls can play we just don’t have any on our team) looked to have a great time. I have to admit that I never realized T-ball was a full contact sport that involved tackling. ;) The boys were so excited to get a chance to field the ball and throw it to first that they all rushed it at once. Derek seems to have some natural talent and enjoys playing so we will encourage this for as long as we can and if he continues GREAT but if not we will have to find something new.

     

As for Monet I took my hand at Arts & Crafts during nap time today and came up with a tutu. It is purple & lilac. I embellished it with rhinestone butterflies and dragonflies in pink & purple, I also added a matching bow to the hip. I thin she likes it, what do you think? 

         

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There was a time

March 18, 2009 · Filed under Friends, Fun Times, Health, Normal Stuff, Outings, Transplants, special needs children

when all we worried about was Derek’s growth and how big he was. Nearly every doctor appointment had a relatively large focus on the Growth Chart.  BTW I hate the growth chart and think that to some degree it is a stupid, focusing on a said standard for children.  I know it is a tool for physicians but some days I dreaded the blue and white table yet dreamed of a day where he would fit on it just perfectly. Derek was born towards the top of the growth chart 8 pounds 12 ounces and 22 inches long…Great Big Bouncing Baby Boy!!!  The chaos hit and he quickly slid down and eventually completely off the growth chart. Now, 18 months post transplant, Derek is at the 70% and it meant nothing to us until recently when we saw him with his T-ball team…he is the BIG KID!!! I still have a serious hate for the Growth Chart but at least both of my kids are on it.

                                                  

Derek is wearing the red shirt and white pants in the center of the photo

 

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More Normal Stuff

March 15, 2009 · Filed under Education/School, Family, Friends, Fun Times, Normal Stuff, Outings, Uncategorized

Other than the doctor appointments (4 on Wednesday) we have been a pretty normal family. Derek just had his second T-ball practice and I have to admit that he is doing pretty darn good. He is very shy but by the end of this week’s practice he really started to warm up and participate. There are only 7-8 kids on his team ‘The Angels’ (how fitting?) So it should be interesting how they do at their first game on March 28. I’ll post a few pictures soon.
Monet is still in dance classes but has lost some of her excitement for it. We will get her through the show on June 6, take the summer off and see if she wants to start back in the fall. Again more pics to come.
We registered Derek for Kindergarten & spoke with the guidance couselor about coming in seeing the teachers’ classrooms to pick an environment we think will suit him best. That way he can meet the teacher a few times before school starts.
I can’t believe life is normal finally, we don’t rush weekly to doctors, we don’t worry about feeding machines or lack of development due to malnourishment, we mostly worry about all the stuff the rest of you parents worry about and I am happy about that. It is nice to beable to take a big deep breath and not feel TONS of pressure on my shoulders day in and day out.

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